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Ellen P. Hermanson
September
22, 1952 - April 11, 1995
Ellen Hermanson was
an articulate, courageous, and indomitable warrior in the war against
breast cancer. Her personal battle with the disease began in February
1989, when she was still nursing her six-month-old daughter, Leora, and
was diagnosed with breast cancer.
Ellen fought against her disease medically by undergoing surgery and aggressive
chemotherapy. Refusing to indulge in self pity or despair, Ellen also
fought against breast cancer by becoming an activist and advocate. A journalist
by training, she used her prodigious talent as a writer to give voice
to the needs of breast cancer survivors and to educate her readers about
the importance of being well informed, the challenges of living with breast
cancer, and the availability of resources to help with the myriad problems
that arise as a result of breast cancer. Her remarkable accomplishments
attest her extraordinary inner strength and selfless generosity.
Ellen became an active
member of the National Coalition for Cancer Survivorship (“NCCS”), which
advocates for survivors of all types of cancer. Later she served on its
board and edited its quarterly newsletter, The Networker.
When Ellen looked
to her own heritage for spiritual support and sustenance, she found that
what she sought did not exist. Instead of bemoaning this lack, Ellen became
one of the founders of Jewish Healing Center. She also served as the organization’s
founding executive director and the first editor of its newsletter, The
Outstretched Arm.
In the spring of 1992,
Ellen was appointed the first executive director of the Judges and Lawyers
Breast Cancer Alert. Ellen coordinated and organized their annual October
symposia bringing together leading experts to tackle, using courtroom
style, cutting edge issues in health law and policy confronting cancer
patients.
In the fall of 1992,
Ellen was diagnosed with a recurrence of her disease-this time in her
bones. Determined not to be limited by her disease, Ellen continued her
work. Although she underwent chemotherapy, and would remain on chemo for
the rest of her life, her condition worsened. Ellen’s many projects included
editing the Annual Report of Memorial Sloan-Kettering Cancer Center for
1993. In November 1994, Ellen delivered an important speech entitled One
Patient’s Pain at the NCCS annual conference, receiving a standing
ovation. She was weak, barely able to walk, and facing hip replacement
surgery that her doctors agreed to delay until after the conference. This
was the same conference where Justice Sandra Day O’Connor spoke of her
breast cancer.
Ellen lost her hard-fought
battle with breast cancer on April 11, 1995, at the age of 42. At the
time of her death, she was working on an article exploring the then new
and exciting potential of the internet as a source of information and
sharing for patients and their families. Ellen left a legacy of dignity,
courage, determination, grace and love to all who knew her. To honor her
memory, The Ellen P. Hermanson Foundation has been established to support
and continue the important work she began.
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